Let go of control to feel great!

Written by Suraj Shah, inspired by the enlightened.

When a loss is imminent, how do you let go?

A friend whose father was very ill had found a way to let go and face the reality of his father’s imminent death.

When I heard that his dad had passed away, I called but did not get through. So I left a voicemail expressing my condolences. Later, in a message he replied:

“… we did everything we could for dad but unfortunately it got to a stage where it was out of our hands. He passed peacefully and that’s all we could ask for.”

It must have taken great courage and strength to write those words. Within those words came a great realisation:

“…it was out of our hands.”

We think we’re in control

How much of what happens in our world is in our hands? How much can we control?

We think that we determine how other people behave and the situations that arise.

We think we can get people to do as we want.

  • We get happy when the sun shines and sad when the rain falls.
  • We get happy cruising in our shiny new car, but upset and angry over the tiniest scratch.
  • We are smitten by the cute new baby, but fall into depression when losing a loved one.
  • We are over the moon when we receive a compliment, but fiercely bitter when people fail to notice our greatest work.

So much of our day to day life is spent trying to control the people and the situations in the world around us.

We so desperately want things to go our way. When they don’t, we plead and we bully, we get angry and upset and we cry.

It’s out of our hands – we control nothing

The reality of life is that we control nothing.

My grandma used to say (in Gujarati):

“jeh thawanu hasse, ee thaasse”.

It loosely translates to:

“what is meant to happen, will”.

For years I would brush it off, thinking my grandma was nuts. What mumbo-jumbo! Of course I control my own destiny. Right?  No so.

Turns out that since she passed on, I’ve come to realise just how right she was.

Things certainly do happen as they are meant to:

  • People come and go.
  • We land jobs and get fired, or made redundant, or just lose interest.
  • We fall in and out of love.
  • Others fall in and out of love with us.
  • Houses are built and fall down, or are demolished, or burned down.
  • Our health is great one moment, and the next we suffer with aches and pains and fevers.

Our life, our world, everything around us is so temperamental. So strange. So odd. How much do we really control?

Everything that happens is appropriate

In gujarati, there is another phrase:

“jeh thaay, teh yogya chhe”

It translates to:

“what happens, is appropriate”.

Based on our self-bound karma, situation arise. What we experience is a result of our own self-bound karma. What others experience is a result of their own self-bound karma.

The situation that arises is appropriate because it is a fruition of that previously-bound karma.

Although we make every effort to help others through a difficult time (which we should), only they have the power to get through the situation.

Just as nobody can truly take away something that we are meant to experience (that which is appropriate to what we have previously bound), in that way we are not able to take away something that another person is due to experience.

Illness is just a result of previously-bound karma arising at the appropriate time.

Death is nothing other than the ending of a karma that determined how long that particular lifespan would be. It is appropriate because that life-span-determining karma had arisen at the time of that person’s conception and had come to an end at the end of their life.

We can’t stop someone from getting ill, nor can we stop them from dying.

We can’t extract them from what they are experiencing, but we can offer strength through our love and support and practical help.

Everything that happens is good

My grandma also used the say (in gujarati):

“jeh thaay, ee saara maate thaay chhe”.

This loosely translates to:

“whatever is happening, is happening for the good”.

This one really used to confuse me. But grandmas, the wise old things that they are, have a terrific way of plantings seed within us that bloom when we most need them to.

Everything that happens is for the best.

Whatever we experience, or whatever our closest friends and family or indeed anybody in the world around us is going through, is as a result of karma that they themselves have bound.

This karma has to come to fruition, nomatter whether they want it to or not.

When an illness arises and passes, then that’s it — the karma has surfaced, and ran its course. Its a good thing. At least you are free from that karma! Of course there’s all the other previously bound karma that also has to run its course, but at least this one’s gone.

Whenever something happens, nomatter how much temporary pleasure or seemingly long-term pain it may bring you, stay calm and be happy that you are freeing yourself from that which is binding you.

We control nothing, yet we control everything

Even though we cannot control the situations that are facing us right now, we certainly have the power to dictate what comes up for us in the future.

This is done by the way in which we respond to situations.

When we see someone going through a lot of pain, if we get angry about not being able to do something about it, we bind more negative karma ourselves, which leads to negative situations arising for us in the future.

However, if we see the reality of that situation for what it is — that they have to endure the pain, then we can calmly and appropriately support that person the best way we can, without getting emotionally attached to the outcome.

By remaining detached and maintaining calm, we minimise trapping ourselves in troubling situations. That, and being happy right now that we are letting whatever is happening right now run its course. 🙂

Letting go, but feeling great!

We think we control everything.  But we don’t and that’s ok. What is meant to happen, will happen. What happens, is appropriate. Whatever is happening, is for the best.

Stay calm, respond appropriately, and be happy!

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Orin Lewis on focusing the mind rather than worrying about loss

Written by Suraj Shah. Conversation with Orin Lewis.

He was bold to shush them, all 3,500 Boyz II Men fans in a fairly-packed Brixton Academy, all waiting eagerly for the concert to start. Before the main act, Orin got up with his bucket and banner.  From the stage, with grace and strength, he told the story that brought the audience to stillness.

Orin Lewis, co-founder and Chief Executive of ACLT, gave a brief but impactful message about what the black and asian community can do to save and enhance the lives of family and friends affected by leukaemia and related blood conditions.

Together with Beverley De-Gale, he had worked tirelessly to find a suitable bone marrow donor for his step-son Daniel De-Gale.

After many years of holding onto hope and faith, they found a donor for a bone marrow transplant that enabled Daniel to live a full and fruitful life including successfully passing his exams at school and University.

“Focus the mind on what needs to be done. Rather than worrying and worrying and turning into a dark corner, come out with a positive attitude.”
– Orin Lewis

Daniel was in full remission and free of Cancer, but due to complications with his health that led to multiple organ failure, he died aged 21, nine years following the transplant.

In this conversation with Orin, we learn about the inner journey that he took, from initially finding out about Daniel’s condition and the rare chance of finding a donor, to successfully finding a donor and making the transplant happen, through to losing Daniel 9 years later, and now several years on, continuing his work, leading a calm and purposeful life.

When Daniel was diagnosed with leukaemia, what fears arose in you, and how did you overcome them?

Orin: It all started when 6-year-old Daniel developed flu-like symptoms. He was taken to hospital three times where he was prescribed Paracetemol. But Daniel continued to complain of aches and pains in his legs, raised glands and bruising on his body.  Beverley took him back to the hospital and insisted they carry out further tests.

Finally on the 7th April 1993 when after numerous misdiagnosis by various experts his numerous debilitating physical ailments were finally correctly diagnosed the tests finally revealed that Daniel was suffering from ALL (Acute Lymphoblastic Leukaemia) which is the most common form of Leukaemia in children.

Daniel was admitted to Great Ormond Street Hospital where he had a Bone Marrow check to determine how severe it was. The hospital said that if another week had elapsed that he probably would have died because the leukaemia cells had infiltrated his blood and bone marrow system very severely.

We were all in a state of complete shock and disbelief and were very fearful of the next stage. But we were told that about 70% of children can be completely cured after five years of intensive treatment.

I am old enough to remember watching the huge TV appeal in the early 1970’s for little Anthony Nolan, who desperately needed a matching Bone Marrow donor. Sadly he never found one and his mother started the world’s first Registry for unrelated donors to be tested for patients in need.

So when Daniel relapsed 9 months after finishing his 2 year cycle of Chemotherapy, we knew that the clock was ticking and time was against him finding a matching unrelated donor (since his younger sister, Dominique was not a match).

The odds of Daniel finding a donor was over 1 in 100,000 due to the lack of Black or Mixed Race donors, whereas if he was White it would be at best closer to 1 in 4 due to the large amount of white donors registered. Hence why the charity was formed.

Our lives had adjusted to his long battle against Leukaemia and dealing with the harshness of his Chemotherapy treatment and now we were thrown into this new world of searching for a life saving donor, whilst he started another 2 year cycle of treatment.

The ultimate fear now was that his body would not be strong enough and that we would run out of time searching and raising the much needed awareness in the UK and abroad via our newly formed charity, the ACLT.

We utilised the old Malcolm X positive statement of “By any means Necessary” as our motto for inspiring and motivating ourselves in relation to staying focused on the aim and objective of what we knew would be a potentially long journey into the unknown.

Also the very strong bond of love for each other as partners and parents gave us the fuel to take on and try to understand what was happening. We always knew there had to be “a method to this madness” that Daniel had to live through and we generally felt that from a negative situation a positive solution would eventually result.

For 9 years, Daniel led a full and fruitful life after the transplant, but then he passed away. What emotions presented themselves in you and how did you manage to rise above them?

Orin: Visually watching my son lose his fight to live in the Intensive Care Unit will ultimately always be the saddest and most disturbing day of my life. I saw the traumatic effect it had on Beverley and those closest to him.

Yet at the same time I knew that I had to be visibly strong in mind, body and soul for everyone especially Beverley and my step-daughter Dominique.

It was not easy but I had a feeling of calmness around me based upon what I believed Daniel would want me to do if he was physically around. Because he was always the one who could calm things down and get reason to break out of a dispute.

I always have and continue getting a lot of my “reality checks” from being around and observing Beverley and Daniel and it has truly had a positive effect upon my natural dour persona.

What impact did losing Daniel have on the purpose of your work?

Orin: The legacy of my step-son, the late great Daniel De-Gale, has been to increase even more the need for Black, Mixed Race and Asian people to hear, see and feel our messaging about stepping forward sooner rather than later as Bone Marrow, Blood and Organ donors.

BME people realize that his transplant was a success, but did not know that in later years due to unrelated health issues Daniel became heavily dependent upon receiving weekly blood transfusions from White people with the same blood group (Luckily blood groups are generally not as race specific as a bone marrow or organ donation, and not enough Black or Asian people are donating blood or carrying organ donor cards).

What is your source of strength for maintaining calm in your day-to-day life?

Orin: Beverley De-Gale (my Soul Mate) and also Dominique, my 2 sons Lutalo and Jelani and finally the groundbreaking and life saving work of our small charity, the ACLT where we have raised the BME donor numbers from approx. 580 to over 37,000 and found over 30 matching and life saving donors.

I feed off the energy (good and bad) from other people which enables me to stay calm and have a balanced equilibrium on my outlook towards life, despite the long term pain and heartache due to Daniel’s long battle against ill health which was then followed by his passing.

The negativity that I initially see and face on a day to day basis from Black, Mixed Race and Asian people on the subject of registering as a lifesaving donor, is the positive fuel that I use to stop myself being engulfed in sorrow and mental pain. I instead turn the negative vibes into positivity by informing, motivating and inspiring so that their minds are changed and they do go onto register and potentially save a life.

The bonus is when I speak to lots of individuals who on the positive flip side say that they have been inspired to register, because they heard our message. That always makes my day, or when someone says “Thank you for doing what you do” because it cements in my mind that we are “doing the right thing”.

I also get a calming reassurance from speaking to the many donors, patients and families linked to our work. And this is a combination of those that became donors, found a donor or sadly lost a loved one due to the lack of a donor. Their individual and collective positive thinking and frame of mind, especially people dealing with sickness and bereavement is so profound and inspiring to me that it enables me to help them whilst at the same time they are mutually helping me.

Any closing thoughts you’d like to share with readers of Live with Loss?

Orin: Daniel your mission in this world has been accomplished, you have helped save so many lives and helped inspire so many others to try and give the gift of life. So it is now for the rest of us to do the right thing as a true legacy to you and do likewise. And when obstacles arise, you just change your direction to reach your goal, you do not change your decision to get there. Remember the road to success is always under construction.

(Photo courtesy of ACLT)

Orin Cadogan-Lewis was awarded with an OBE (Officer of the Order of the British Empire) in the Queen’s 2012 New Years Honours List in recognition for services to healthcare. Find out more about the work his charity does to promote bone marrow and blood donation at www.aclt.org.